Registry-based stroke research in Taiwan:

• 발행기관: 한국역학회
• 저자명: Cheng-Yang Hsieh Darren Philbert Wu Sheng-Feng Sung
• 간행물 정보: 『Epidemiology and Health』40, 1~7쪽, 전체 7쪽
• 주제분류: 의약학 > 면역학
• 파일형태: PDF
• 발행일자: 2018.01.01

영문 초록

Stroke registries are observational databases focusing on the clinical information and outcomes of stroke patients. They play an important role in the cycle of quality improvement. Registry data are collected from real-world experiences of stroke care and are uitable for measuring quality of care. By exposing inadequacies in performance measures of stroke care, research from stroke registries has changed how we manage stroke patients in Taiwan. With the success of various quality improvement campaigns, mortality from stroke and recurrence of stroke have decreased in the past decade. After the implementation of a nationwide stroke registry, researchers have been creatively expanding how they use and collect registry data for research. Through the use of the nationwide stroke registry as a common data model, researchers from many hospitals have built their own stroke registries with extended data elements to meet the needs of research. In collaboration with information technology professionals, stroke registry systems have changed from web-based, manual submission systems to automated fill-in systems in some hospitals. Furthermore, record linkage between stroke registries and administrative claims databases or other existing databases has widened the utility of registry data in research. Using stroke registry data as the reference standard, researchers have validated several algorithms for ascertaining the diagnosis of stroke and its risk factors from claims data, and have also developed a claims based index to estimate stroke severity. By making better use of registry data, we believe that we will provide better care to patients with stroke.

목차

INTRODUCTION

WHAT IS A STROKE REGISTRY?

STROKE REGISTRIES AND THE CYCLE OF QUALITY IMPROVEMENT

TAIWAN STROKE REGISTRY

RESEARCH FROM THE TAIWAN STROKE REGISTRY

TAIWAN STROKE REGISTRY AS A COMMON DATA MODEL

STROKE REGISTRIES AND ELECTRONIC MEDICAL RECORDS

RECORD LINKAGE

FUTURE PERSPECTIVES

키워드

Database Electronic health recordsMedical record linkage Registries Research Stroke